Fixator Surgery for Perthes Disease

Tayo was diagnosed with Perthes disease in March 2009 and had the fixator surgery with Dr. Standard in August. He is now about 9 months post-fixator. Tayho shared the most amazing thing with me tonight: today in school (5th grade) they had to write about the worst thing that has happened to them. Tayo says to me, "Guess what I wrote about?" I just looked at him. He said, "Not Perthes. It isn't the worst thing that has ever happened to me. Actually, it is one of the best things. And the fixator is one of the best things too. Think about all the friends we've met. Think about all the things I can do now that I couldn't do before."

I just looked at him and said, "Wow. That is such an amazing outlook to have Tayo," and then tried not to cry!

We never know how things like Perthes will affect our children. As hard as it is (and I know how hard that fixator can be) our children somehow seem to come through it with a perspective that is positive and that enables them to be better and stronger and more compassionate people.
Were it not for Dr. Standard and the team at RIAO, I fear that Tayo would not be in the same place that he is now, not physically or emotionally. Dr. Standard (and the fixator) has allowed Tayo to re-gain all the running and jumping and physical activities that mean so much to him. Dr. Standard and his team have also helped Tayo endure and come through this treatment with courage, strength, perseverance, and a sense of accomplishment that comes from being supported and encouraged by people who truly have your best interests at heart. We will be forever grateful to Dr. Standard and his team for the positive impact they have had on our lives.

Mary Anne and Tayo (age 10)


Original Published Link Fixator Surgery for Perthes Disease

#Accomplishment, #Age10, #PerthesDisease, #PhysicalActivities, #RIAO #Orthopaedics

Comments

Post a Comment

Popular posts from this blog

Breast Cancer Survivor Uses Her Experience to Help Other Women

Image
On a typical day at  Johns Hopkins Medical Imaging at Green Spring Station , patients coming in for imaging tests such as  MRIs ,  ultrasounds  and  mammograms have a comforting advocate available in the waiting room. Kate Pisano is a patient liaison — there to meet the needs of the patients by providing resources and support. With Kate’s smile and cheerful attitude, it’s not obvious that recently she too was a patient sitting in the waiting room confronting her own major health challenges. Two years ago Kate was fighting breast cancer and facing it alone as a single working mother of two teenaged sons. Months after a painful divorce, Kate noticed a lump in her breast while getting undressed. “I was afraid of what the lump might mean, so I waited several weeks before finally making an appointment with my doctor,” she said. That appointment led to a mammogram followed by a  biopsy . In April of 2012, Kate’s greatest fear was confirmed: She had breast cancer. “The diagnosis was a complet
Read more

Having pancreatic cancer a suspicious tumor on your pancreas

Image
https://www.youtube.com/watch?time_continue=15&v=QDwctWY-DOQ Joseph “Cook” Edens III doesn’t let pancreatic cancer get in the way of living a full life. Edens was diagnosed with pancreatic cancer and underwent a Whipple procedure at The Johns Hopkins Hospital. Unfortunately, a bout of pancreatitis returned, and in 2015, surgeon Christopher Wolfgang and his team performed a total pancreatectomy on Edens, removing his entire pancreas and spleen. The Arlington, Virginia, resident is now cancer-free and back to a busy lifestyle of work, sports and family time. About Johns Hopkins Pancreatic Cancer Care Having pancreatic cancer — or a suspicious tumor on your pancreas — is a frightening diagnosis. Johns Hopkins experts, some of the most experienced pancreatic specialists in the country, are working to dispel fear and create hope in patients with pancreatic disease. Pancreatic cancer, tumors and cysts are being treated with dramatic success at Johns Hopkins. The first step when dealing w
Read more

Howard's Weight Loss Journey

Image
https://www.youtube.com/watch?v=XfmgTU6L524 HOME››ABOUT LAHEY TEXT SIZE | SHARE | PRINT Howard's Story “I thank them for helping me get to where I’m at, and they keep telling me that it was all me doing the work. But, I know that if I wasn’t coming every two weeks to see them, I wouldn’t be this way.” They say timing is everything, and in April 2011, Howard Jardine was eager to change his life. Weighing in at 405 pounds, he decided it was finally time to join Lahey’s Medical Weight Loss program. Looking back, Howard says it was one of the best decisions he has ever made, as he found support from a team that encouraged and motivated him throughout his weight loss journey. At 405 pounds, Howard was the heaviest he had ever been, and the heaviest that he wanted to be. He was starting to feel the strain that the weight was causing on his relationship with his five-year-old daughter, and he didn’t want to miss out on her milestones. Howard’s mother was overweight and suffered a stroke a
Read more